Welcome to Stand with HPP, an Alexion sponsored hypophosphatasia (HPP) community focused website, offering support, connections, and resources for those living with HPP.
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College, Work, and HPP

“I couldn’t believe it. My first day at college finally happened.” Brittan knew it would be difficult to juggle everything, but she’s managing her pain and finding the energy to succeed. See how Brittan handles...
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The Right Diagnosis

Diagnosing a rare bone disease like hypophosphatasia (HPP) can be difficult for most physicians. See how a mother’s persistence helped her child get the care she needed.

Low Impact Can Have a Big Impact

People with hypophosphatasia (HPP) are often limited in the activities they can participate in and the amount of exercise they can do. Check out these quick and easy suggestions that can get you moving without overdoing it.
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Bad Nutrition? Or HPP?

Being the parent of a young child with hypophosphatasia (HPP) can be a challenge. But getting a confirmed diagnosis of HPP can be confusing and lead to an ongoing struggle.
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Caring for a Child with HPP: A Mother’s Story

Amy found out there was something wrong when she was 20 weeks pregnant. See how Amy gets Aubrey the very best care by educating herself and working tirelessly with Aubrey’s healthcare team.

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Stand with HPP is an Alexion sponsored hypophosphatasia (HPP) community focused website, offering support, connections, and resources for those living with HPP.

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Email your story to mystory@standwithhpp.com. If it’s selected to be showcased on the Stand With HPP website, a representative will contact you with additional instructions.

Patient Stories