Welcome to Stand with HPP, an Alexion sponsored hypophosphatasia (HPP) community focused website, offering support, connections, and resources for those living with HPP.

Is HPP in Your Family Tree?

Hypophosphatasia (HPP) is a hereditary condition that may be passed down from parent to child. Learn more about two ways HPP can be inherited.

My Demon Has a Name: It’s HPP

Not knowing you have hypophosphatasia (HPP) can be the worst part of the condition for some people. Find out how one person found the strength to fight after she received her HPP diagnosis.

Assemble Your HPP Team

Now that you or a loved one have been diagnosed with hypophosphatasia (HPP), it’s time to assemble your healthcare team. We put together some information to help you prepare for what comes next.
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College, Work, and HPP

“I couldn’t believe it. My first day at college finally happened.” Brittan knew it would be difficult to juggle everything, but she’s managing her pain and finding the energy to succeed. See how Brittan handles...
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The Right Diagnosis

Diagnosing a rare bone disease like hypophosphatasia (HPP) can be difficult for most physicians. See how a mother’s persistence helped her child get the care she needed.

Events

Alexion
Ambassador
Program

Join us for an interactive, educational program for people living with HPP, their family members and caregivers.
Register now for the event you want to attend.

 

Newsletter

Check It Out

Stand with HPP is an Alexion sponsored hypophosphatasia (HPP) community focused website, offering support, connections, and resources for those living with HPP.

Stay Connected

Share Your Story

Email your story to mystory@standwithhpp.com. If it’s selected to be showcased on the Stand With HPP website, a representative will contact you with additional instructions.

Patient Stories