Welcome to Stand with HPP, an Alexion sponsored hypophosphatasia (HPP) community focused website, offering support, connections, and resources for those living with HPP.

Events

Alexion
Ambassador
Program

Join us for an interactive, educational program for people living with HPP, their family members and caregivers.
Register now for the event you want to attend.

 

Advocacy Groups

Soft Bones

The US Hypophosphatasia Foundation and Soft Bones Canada provide information and a community to educate, empower, and connect people, families, and caregivers living with hypophosphatasia.

MAGIC Foundation

The MAGIC Foundation provides support and education to families of children with growth disorders and affected adults with endocrine disorders.

Newsletter

Check It Out

Stand with HPP is an Alexion sponsored hypophosphatasia (HPP) community focused website, offering support, connections, and resources for those living with HPP.

Stay Connected

Share Your Story

Email your story to mystory@standwithhpp.com. If it’s selected to be showcased on the Stand With HPP website, a representative will contact you with additional instructions.