Welcome to Stand with HPP, an Alexion sponsored hypophosphatasia (HPP) community focused website, offering support, connections, and resources for those living with HPP.

Childcare and HPP

For some people, finding suitable childcare for their loved one with hypophosphatasia (HPP) can be a challenging process. Find out more about what to look for in a childcare professional or center-based care. Finding center-based care...

Start the Conversation About HPP

Find out more about ways to let people know how hypophosphatasia (HPP) is affecting your life. People with hypophosphatasia (HPP) may find themselves in a situation where someone is demanding more from them than they are...

Be a Valuable Member of Your Healthcare Team

A key factor in your hypophosphatasia (HPP) treatment is having good communication with your healthcare team. Try these tips to improve the relationships with your doctors. People with hypophosphatasia (HPP) should prioritize finding a knowledgeable primary...

Is HPP in Your Family Tree?

Hypophosphatasia (HPP) is a hereditary condition that may be passed down from parent to child. Learn more about two ways HPP can be inherited.

My Demon Has a Name: It’s HPP

Not knowing you have hypophosphatasia (HPP) can be the worst part of the condition for some people. Find out how one person found the strength to fight after she received her HPP diagnosis.

Events

Alexion
Ambassador
Program

Join us for an interactive, educational program for people living with HPP, their family members and caregivers.
Register now for the event you want to attend.

 

Newsletter

Check It Out

Stand with HPP is an Alexion sponsored hypophosphatasia (HPP) community focused website, offering support, connections, and resources for those living with HPP.

Stay Connected

Share Your Story

Email your story to mystory@standwithhpp.com. If it’s selected to be showcased on the Stand With HPP website, a representative will contact you with additional instructions.

Patient Stories