Now that you or a loved one have been diagnosed with hypophosphatasia (HPP), it’s time to assemble your healthcare team. We put together some information to help you prepare for what comes next.
Hypophosphatasia (HPP) can affect many parts of the body and it’s common for people with HPP to see several different doctors to manage their condition. Because HPP is a rare condition, it’s important to find a specialist with some knowledge of HPP. Talk to your primary care physician about who else should be on your HPP healthcare team. They can help you coordinate with other doctors and depending on your symptoms, you may need to see multiple specialists with different areas of expertise.
Possible members of your HPP healthcare team:
Given the complex nature of HPP and the number of doctors that can be involved in managing this condition, it’s critical to take an active role in the decision-making process and make your voice heard so you can find the help you or your child need. It’s also important to learn as much as you can about HPP and communicate openly with all of your doctors about how you or your loved one is feeling and the symptoms being experienced so you can see the right doctor at the right time.
Our informative articles and patient stories are frequently being updated so visit Stand with HPP first when you have questions about HPP or are seeking support from the HPP community. We are here to help find what you’re looking for and help you stay connected.