Being a teen can be rough. Being a teen with hypophosphatasia (HPP) at school can be even tougher. Check out these simple tips. They can really help.
Having HPP can make common daily activities challenging. And being out of your home or in an uncontrolled environment (like at school) can make things even more difficult.
Since HPP is a rare disease, other students and teachers at school may not know anything about it. And talking about your HPP can be uncomfortable because some people may not be able to understand what you’re going through. However, it’s important to tell the school staff about your needs so that you can succeed and stay engaged while you’re at school. You may also want to speak with your teachers about how they should explain HPP to other children. But remember that what you decide to discuss about HPP is a very personal decision, so only share what you’re comfortable sharing.
HPP can make moving around and walking difficult, so you may need extra time to travel from class to class or around campus. You may also need to participate in alternative activities during recess or gym. You can suggest things you’re interested in and work with the school staff to figure out a plan for your daily activities.
It’s also critical to provide the school administration with a written document that highlights your specific needs, like prescription medications you may take or any procedures that may be required during the school day. And make sure you provide them with instructions so they are prepared if a problem should arise. Most schools have your basic contact information, but you should include instructions about who to contact in case of an emergency as well as your doctor’s name and phone number.
By following a few simple steps, providing written guidance, and having open and honest conversations with the school staff, you can make things a lot easier for yourself and help make school a safe place to learn and succeed.
When you have questions about HPP or how to create a safe environment at school, along with your healthcare professionals, we’re here to help you. Our articles and patient stories are continuously being updated. If you want to continue your search somewhere else, we can help with that too.